Journal article

OMERACT Development of a Core Domain Set of Outcomes for Shared Decision-making Interventions

Karine Toupin-April, Jennifer L Barton, Liana Fraenkel, Alexa Meara, Linda C Li, Peter Brooks, Maarten de Wit, Dawn Stacey, France Legare, Beverley Shea, Anne Lyddiatt, Cathie Hofstetter, Robin Christensen, Marieke Scholte Voshaar, Maria E Suarez-Almazor, Annelies Boonen, Tanya Meade, Lyn March, Janet Elizabeth Jull, Willemina Campbell Show all

The Journal of Rheumatology | J RHEUMATOL PUBL CO | Published : 2019

Abstract

OBJECTIVE: The Outcome Measures in Rheumatology (OMERACT) Shared Decision Making (SDM) Working Group aims to determine the core outcome domain set for measuring the effectiveness of SDM interventions in rheumatology trials. METHODS: A white paper was developed to clarify the draft core domain set. It was then used to prepare for interviews to investigate reasons for lack of consensus on it and to suggest further improvements. RESULTS: OMERACT scientists/clinicians (n = 13) and patients (n = 10) suggested limiting the core domain set to outcome domains, removing process domains, and clarifying remaining domains. CONCLUSION: A revised core domain set will undergo further consensus-building.

Grants

Awarded by US National Institute of Arthritis and Musculoskeletal and Skin Diseases (NIAMS), part of the National Institutes of Health (NIH)


Awarded by NIAMS, part of the NIH


Awarded by Oak Foundation


Funding Acknowledgements

K. Toupin-April is funded by the Children's Hospital of Eastern Ontario Research Institute and The Arthritis Society. J.L. Barton's research reported in this publication was supported by the US National Institute of Arthritis and Musculoskeletal and Skin Diseases (NIAMS), part of the National Institutes of Health (NIH), under Award Number K23-AR-064372. L. Fraenkel's research reported in this publication was supported by NIAMS, part of the NIH, under Award Number AR060231-01. D. Stacey holds a University of Ottawa Research Chair in Knowledge Translation to Patients. F. Legare holds a Tier 1 Canada Research Chair in Shared Decision Making and Knowledge Translation. R. Christensen's research at the Parker Institute is supported by grants from The Oak Foundation (OCAY-13-309). L. March's research is supported by the Northern Sydney Local Health District. S. Hill is supported by La Trobe University. P.S. Tugwell holds a Canada Research Chair.