Journal article

Living with Geographic Atrophy: An Ethnographic Study

Sobha Sivaprasad, Elizabeth A Tschosik, Robyn H Guymer, Audrey Kapre, Ivan J Suner, Antonia M Joussen, Paolo Lanzetta, Daniela Ferrara

Ophthalmology and Therapy | SPRINGER INTERNATIONAL PUBLISHING AG | Published : 2019

Abstract

INTRODUCTION: The specific impact from the patient's perspective of geographic atrophy (GA), an advanced form of age-related macular degeneration (AMD), is not well understood. METHODS: An ethnographic study was conducted to understand the impact of bilateral GA secondary to AMD on daily functioning by observing regular activities performed at home and through semi-structured interviews. Eligible subjects had a definitive GA diagnosis, including presence of drusen, GA lesion size of at least one disc area in the better-seeing eye, and no other confounding ophthalmologic diagnosis. Data were collected via video recordings and field notes, and analyzed by coding video transcripts. RESULTS: Fun..

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Grants

Funding Acknowledgements

F. Hoffmann-La Roche Ltd. supported and contributed to all aspects of the study, including the study design; financial support to Edelman for assistance with conducting the study; Endpoint Outcomes for assistance with analyses, data interpretation, and report writing; and funding of publication fees. All authors had full access to all of the data in this study and take complete responsibility for the integrity of the data and accuracy of the data analysis.