Conference Proceedings
Myeloproliferative Neoplasm Quality of Life (MPN-QOL) Study Group: MPN Experimental Assessment of Symptoms By Utilizing Repetitive Evaluation (MEASURE) Trial
Allison Gathany, Robyn M Scherber, Marlene Girardo, Heidi E Kosiorek, Amylou C Dueck, Holly Geyer, Veena DS Fauble, Alessandro M Vannucchi, Ana Kerguelen Fuentes, Christen Lykkegaard Andersen, Elisabeth Ejerblad, Gunnar Birgegard, Peter L Johansson, Bjorn Andreasson, David M Ross, Federico Sackman, Jean-Loup Demory, Constantine S Tam, Jan J Michiels, Deepti Radia Show all
BLOOD | AMER SOC HEMATOLOGY | Published : 2018
Abstract
Abstract Background: Myeloproliferative neoplasms (MPN) including polycythemia vera (PV), essential thrombocythemia (ET), and myelofibrosis (MF) are clonal hemopathies characterized by burdensome symptom profiles and impaired quality of life. Treatments include pharmacologic approaches, phlebotomy, and bone marrow transplant. Outcome studies have historically focused on hematologic improvement and survival benefit. Few prospective studies have evaluated patient-reported symptoms and quality of life outcomes after standard therapy. The Myeloproliferative Neoplasm Quality of Life (MPN-QOL) Study Group aims to objectively quantify symptomatic response to standard t..
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