Journal article

Identifying Important Outcomes for Young People With CKD and Their Caregivers: A Nominal Group Technique Study

Camilla S Hanson, Talia Gutman, Jonathan C Craig, Sarah Bernays, Gayathri Raman, Yifan Zhang, Laura J James, Angelique F Ralph, Angela Ju, Karine E Manera, Armando Teixeira-Pinto, Andrea K Viecelli, Stephen Alexander, Tom D Blydt-Hansen, Janis Dionne, Steven McTaggart, Mini Michael, Amanda Walker, Simon Carter, Scott E Wenderfer Show all

AMERICAN JOURNAL OF KIDNEY DISEASES | W B SAUNDERS CO-ELSEVIER INC | Published : 2019

Abstract

RATIONALE & OBJECTIVE: Chronic kidney disease (CKD) has wide-ranging and long-term consequences for young people and their families. The omission of outcomes that are important to young people with CKD and their caregivers limits knowledge to guide shared decision making. We aimed to identify the outcomes that are important to young people with CKD and their caregivers. STUDY DESIGN: We used the nominal group technique whereby participants identified and ranked outcomes and explained their priorities. SETTINGS & PARTICIPANTS: Young people with CKD (stages 1-5, dialysis, or transplantation) and their caregivers were purposively sampled from 6 centers across Australia, the United States, and C..

View full abstract

Grants

Awarded by National Health and Medical Research Council (NHMRC) Program Grant


Awarded by NHMRC Fellowship


Awarded by NHMRC Medical Postgraduate Scholarship


Awarded by NHMRC Program Grant Better Evidence and Translation in Chronic Kidney Disease (BEAT-CKD)


Funding Acknowledgements

Dr Hanson is supported by the National Health and Medical Research Council (NHMRC) Program Grant (ID1092957). Dr Tong is supported by an NHMRC Fellowship (ID1106716). Dr Viecelli receives grant support from the NHMRC Medical Postgraduate Scholarship (1114539) and the Royal Australasian College of Physicians (Jacquot NHMRC Award for Excellence). The study was funded by The University of Sydney Research Accelerator Grant and the NHMRC Program Grant Better Evidence and Translation in Chronic Kidney Disease (BEAT-CKD) (ID1092957). The funders of this study had no role in the study design, data collection, data analysis, interpretation of data, writing of the manuscript, and the decision to submit the report for publication.