A Capacity Building Program to Improve the Self-Efficacy of Key Workers to Support the Well-Being of Parents of a Child With a Disability Accessing an Early Childhood Intervention Service: Protocol for a Stepped-Wedge Design Trial
Elise Davis, Dana Young, Kim-Michelle Gilson, John Reynolds, Rob Carter, Utsana Tonmukayakul, Katrina Williams, Lisa Gibbs, Rachael McDonald, Dinah Reddihough, Jane Tracy, Jennifer Morgan, Paul Ireland, Cassie Kenyon, Rod Carracher
JMIR RESEARCH PROTOCOLS | JMIR PUBLICATIONS, INC | Published : 2019
BACKGROUND: Early childhood intervention services support children with disabilities or developmental delays from birth to school entry with the aim to achieve optimal outcomes for children and their families. A transdisciplinary approach to delivering early childhood intervention, particularly the key worker model, is considered the best practice, where allied health professionals (eg, speech pathologists, physiotherapists, occupational therapists, psychologists, and special educators) and the family work together as a collaborative team to share information, knowledge, and skills across disciplinary boundaries, with a key worker coordinating and delivering most of the intervention to achie..View full abstract
The authors would like to acknowledge the contribution of the parents of a child with a disability and the staff members from Yooralla who contributed to the qualitative research that informed the development of this trial. We acknowledge the contribution of our colleague and friend, the late Professor Elizabeth Waters, who founded this study in partnership with Yooralla to enhance the health and well-being of children with a disability and their families through improved support services. We also acknowledge Adjunct Professor Jeffrey Chan for his contribution to the foundation and development of the study during his role as Chief Practitioner at Yooralla and Jenifer Morris-Cosgriff and Elaine Krassas for their contribution to the design of the intervention. We thank the Melbourne Clinical and Translational Sciences research platform for the administrative and technical support that facilitates this research. Salary support for investigators is acknowledged from The Jack Brockhoff Foundation, the APEX Foundation for Research into Intellectual Disability, and the Royal Children's Hospital Foundation.