Journal article

An International Collaborative Standardizing Patient-Centered Outcome Measures in Pediatric Facial Palsy

Daniel P Butler, Alethse De la Torre, Gregory H Borschel, Tessa A Hadlock, Carien Beurskens, Kathleen Bogart, Alexander Cardenas Mejia, Christopher Coombs, Jocelyne Copeland, Jacqueline Diels, Teresa Gonzalez-Otero, Louise Graham, Lisa Ishii, Raman Malhotra, Adelaida Martinez, Lisa McKinley, Mara W Robinson, Sinikka Suominen, Akihiko Takushima, Evangelina Vazquez Curiel Show all

JAMA FACIAL PLASTIC SURGERY | AMER MEDICAL ASSOC | Published : 2019

Abstract

Importance: Standardization of outcome measurement using a patient-centered approach in pediatric facial palsy may help aid the advancement of clinical care in this population. Objective: To develop a standardized outcome measurement set for pediatric patients with facial palsy through an international multidisciplinary group of health care professionals, researchers, and patients and patient representatives. Design, Setting, and Participants: A working group of health care experts and patient representatives (n = 21), along with external reviewers, participated in the study. Seven teleconferences were conducted over a 9-month period between December 3, 2016, and September 23, 2017, under th..

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