Journal article

Content validation of the Quality of Life Inventory-Disability

Amy Epstein, Katrina Williams, Dinah Reddihough, Nada Murphy, Helen Leonard, Andrew Whitehouse, Peter Jacoby, Jenny Downs

Child: Care, Health and Development | WILEY | Published : 2019


BACKGROUND: Focus is shifting to better understand the lived experiences of children with intellectual disability in relation to their quality of life (QOL). Yet no available QOL measures are grounded in the domains important for this population. We previously conducted qualitative parent caregiver interviews identifying QOL domains in children with intellectual disability to constitute a new measure of QOL. This study describes the content validity of the Quality of Life Inventory-Disability (QI-Disability), a parent-report measure developed for children with intellectual disability. METHODS AND RESULTS: Questionnaire items were extracted from a qualitative dataset of 77 parent caregiver in..

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