Journal article

More than an X-ray: Experiences and perspectives of parents of children with cerebral palsy when engaging in hip surveillance

Rachel Toovey, Kate L Willoughby, Jan M Hodgson, H Kerr Graham, Dinah S Reddihough

JOURNAL OF PAEDIATRICS AND CHILD HEALTH | WILEY | Published : 2020

Abstract

AIM: We explored the experiences of parents of children with cerebral palsy (CP) when engaging in hip surveillance for their child and aimed to identify the barriers and facilitators they encounter. METHODS: We conducted a pragmatic qualitative study through five focus groups conducted with 23 parents and primary care givers of young people with cerebral palsy. A semi-structured topic guide was used to facilitate discussion. Recordings were transcribed verbatim and transcripts analysed using content analysis. RESULTS: Six major categories emerged: (i) hip surveillance is a shared responsibility; (ii) knowledge is empowering; (iii) hip surveillance should be proactive rather than reactive; (i..

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