Communication and cognitive impairments and health care decision making in MND: A narrative review

Abstract

Rationale: Motor neurone disease (MND) is a neurodegenerative disease presenting with progressive weakness of voluntary muscles. For any condition, person-centred health care relies on the sharing of information and a mutual understanding of the person's needs and preferences. Decision making in MND becomes more complex as there is no cure and a high prevalence of co-morbid communication and/or cognitive difficulties. Objective: To identify the reported impact of communication and/or cognitive impairment on patient and carer involvement in health care decision making in MND. Methods: A review and synthesis of studies addressing issues of communication impairment and/or cognitive impairment i..