Journal article

Satisfaction, disappointment and regret surrounding fertility preservation decisions in the paediatric and adolescent cancer population

Sadunee Jayasuriya, Michelle Peate, Catherine Allingham, Nancy Li, Lynn Gillam, Margaret Zacharin, Peter Downie, Paddy Moore, Leanne Super, Lisa Orme, Franca Agresta, Catharyn Stern, Yasmin Jayasinghe

JOURNAL OF ASSISTED REPRODUCTION AND GENETICS | SPRINGER/PLENUM PUBLISHERS | Published : 2019

Abstract

PURPOSE: With over 80% of paediatric and adolescent cancer patients surviving into adulthood, quality-of-life issues such as future fertility are increasingly important. However, little is known about regret around decisions to pursue or forgo fertility preservation (FP). We investigated the risk of decision regret in families involved in making a FP decision and explored contributive factors. METHODS: Parents and patients ≥ 15 years were invited to participate. Participants completed a 10-item survey, including a validated Decision Regret Scale. Scores ≥ 30 indicated high regret. Free-text response items allowed participants to provide reasons for satisfaction or regret. RESULTS: A total of..

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