Journal article

Patients' and Caregivers' Contested Perspectives on Spiritual Care for Those Affected by Advanced Illnesses: A Qualitative Descriptive Study

Clare O'Callaghan, Joanne Brooker, William de Silva, David Glenister, Adelaide Melia, Xavier Symons, David Kissane, Natasha Michael

JOURNAL OF PAIN AND SYMPTOM MANAGEMENT | ELSEVIER SCIENCE INC | Published : 2019

Abstract

CONTEXT: Spiritual care refers to practices and rituals addressing spiritual/religious concerns. It supports coping with loss and finding hope, meaning, and peace. Although integral to palliative care, its implementation is challenging. OBJECTIVE: To understand an Australian cohort of patients' and caregivers' perspectives about experiencing and optimizing spiritual care in the context of advanced illness. METHODS: Patients and caregivers of patients with ≤12 month prognosis were recruited from a broader spiritual study via criterion sampling and agreed to opt-in interviews. Participants from an Australian, metropolitan health service received a spiritual care definition and were interviewed..

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Grants

Funding Acknowledgements

This study was funded by the Cabrini Foundation Sambor Family Clinical Research Grant, The University of Notre Dame Australia SoMS Research Support Grant, and the Palliative Care Research Network (Victoria, Australia) Small Project Grant. The authors thank all the patients and caregivers who participated in the study, Prof Sandra Lynch for intellectual input, and Sonia Maleki for assistance with manuscript preparation. The authors declare that there is no conflict of interest. We do not have permission from the Cabrini Human Research and Ethics Committee nor consented research participants to release the confidential data; therefore, it cannot be made available to the public.