Journal article

Mapping the nature of distress raised by patients with high-grade glioma and their family caregivers: a descriptive longitudinal study

Jennifer Philip, Anna Collins, Stacey Panozzo, Jane Staker, Michael Murphy

Neuro-Oncology Practice | OXFORD UNIV PRESS | Published : 2020


Background: Few supportive and palliative care interventions have been described for people with high-grade glioma (HGG) and their caregivers. A structured intervention, I-CoPE, which includes regular screening of patients' and caregivers' needs, was delivered as a pilot study in a tertiary neuro-oncological unit. This study prospectively described the severity and content of key concerns raised by patients and their caregivers in the 3 months following a diagnosis of HGG. Methods: Consecutive patients and caregivers were screened for distress longitudinally using the Distress Thermometer at 3 time points. Exploration of the issues raised during screening was undertaken by the care coordinat..

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Funding Acknowledgements

This work was supported by a grant from the Australian Primary Health Care Research Institute, Department of Health and Ageing, Commonwealth Government of Australia.