Development of an eHealth information resource for family carers supporting a person receiving palliative care on the island of Ireland
David Scott, Peter Hudson, Karen Charnley, Cathy Payne, Gareth Westcott
BMC PALLIATIVE CARE | BMC | Published : 2019
BACKGROUND: Many people receiving palliative care wish to die at home. Often, support from family or friends is key to ensuring that this wish is fulfilled. However, carers report feeling underprepared to undertake this role. This paper describes the process of developing a consensus and evidence based website to provide core information to help people support someone receiving palliative care on the island of Ireland. METHODS: The project comprised three phases: (1) a review of systematic reviews facilitated the identification of core information needs; (2) content was developed in collaboration with a Virtual Reference Group (VRG) comprising patients, carers and professionals; and, (3) sub..View full abstract
This project was funded in part by a grant from the All Ireland Institute of Hospice and Palliative Care.