Journal article

Trust in genomic data sharing among members of the general public in the UK, USA, Canada and Australia

R Milne, KI Morley, H Howard, E Niemiec, D Nicol, C Critchley, B Prainsack, D Vears, J Smith, C Steed, P Bevan, J Atutornu, L Farley, P Goodhand, A Thorogood, E Kleiderman, A Middleton

Human Genetics | SPRINGER | Published : 2019

Abstract

Trust may be important in shaping public attitudes to genetics and intentions to participate in genomics research and big data initiatives. As such, we examined trust in data sharing among the general public. A cross-sectional online survey collected responses from representative publics in the USA, Canada, UK and Australia (n = 8967). Participants were most likely to trust their medical doctor and less likely to trust other entities named. Company researchers were least likely to be trusted. Low, Variable and High Trust classes were defined using latent class analysis. Members of the High Trust class were more likely to be under 50 years, male, with children, hold religious beliefs, have pe..

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University of Melbourne Researchers