Journal article

Patient-reported outcome measures (PROMs) in pancreatic cancer: a systematic review

Ashika D Maharaj, Stella Samoborec, Sue M Evans, John Zalcberg, Rachel E Neale, David Goldstein, Neil Merrett, Kate White, Daniel Croagh, Charles HC Pilgrim, Peter Evans, Brett Knowles, Trevor Leong, Jennifer Philip, Marty Smith, Liane Ioannou

HPB | ELSEVIER SCI LTD | Published : 2020


BACKGROUND: The aim of this systematic review is to examine patient-reported outcome measures (PROMs), their attributes and application in patients with pancreatic cancer (PC). METHOD: A systematic literature search was undertaken of articles published to June 2018 to identify PROMs applied in primary studies in PC. Characteristics of the included studies and PROMs were described with identified scales grouped into five domains. The psychometric properties of the identified PROMs were further assessed for reliability and validity among patients with PC. RESULTS: From 1688 studies screened, 170 were included. Almost half (48%) were conducted in patients with unresectable PC; the majority of t..

View full abstract


Awarded by Australian National Health and Medical Research Council (NHMRC)

Funding Acknowledgements

The authors of this study would like to acknowledge the Australian National Health and Medical Research Council (NHMRC) for the Pancreatic Cancer Registry for Quality Improvement (PCR4QI) grant [grant number APP1125395]. RE Neale is funded by a fellowship from the NHMRC. SM Evans is funded by a fellowship from the Victorian Cancer Agency (VCA).