Lessons learnt from implementing change in newborn bloodspot screening processes over more than a decade: Midwives, genetics and education
Amy Nisselle, Michelle Bishop, Taryn Charles, Sally Morrissy, Emily King, Sylvia Metcalfe, Clara Gaff
Midwifery | ELSEVIER SCI LTD | Published : 2019
OBJECTIVE: To explore midwives' roles and education requirements in newborn bloodspot screening (NBS) for genetic conditions, as programs and supporting education evolve over time. BACKGROUND: NBS processes are evolving and will continue to evolve with new genetic and genomic technologies. Midwives have a critical role in facilitating NBS, as they are the primary healthcare professional to interact with parents at the time of collecting the bloodspot. As new consent processes and genomic technologies are incorporated into NBS, midwives need to stay up-to-date with these changes, so that parents can make an informed decision about having the test and future use of the DNA sample. RESEARCH DES..View full abstract
Awarded by National Health and Medical Research Council
Funding for the study was provided by the Murdoch Children's Research Institute and the Victorian Government Operational Infrastructure Support Program. Dr Bishop held a National Health and Medical Research Council Public Health Postgraduate Scholarship when conducting the 2006 study (334389).