Journal article

Enhancing Parental Coping with a Child's Heart Condition: A Co-production Pilot Study

Alun C Jackson, Erica Frydenberg, Xui Min Koey, Amanda Fernandez, Rosemary O Higgins, Tracy Stanley, Rachel Pui-Tak Liang, Michael R Le Grande, Barbara M Murphy

Comprehensive Child and Adolescent Nursing | TAYLOR & FRANCIS INC | Published : 2020


Families of children with congenital heart disease (CHD) can have difficulties coping with the stress of their child's condition and would benefit from assistance to cope better. To address the needs of these parents, the Australian Center for Heart Health/HeartKids Australia/Melbourne Graduate School of Education co-produced Family Coping Project was initiated. This project involved two systematic literature reviews, interviews with parents of children with CHD, and the development and piloting of a manualised parental coping program. The primary aims of the pilot study were to determine whether the program would: attract high needs families; enhance the coping self-efficacy of parents; and..

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