Public views on sharing anonymised patient-level data where there is a mixed public and private benefit

Abstract

The research we present in this report investigates the acceptability of sharing patient data in this uncertain space; focussing on situations where there is a potential mixed public and private benefit. It identifies factors that influence people’s attitudes towards sharing of anonymised patient-level data where disclosure is for both a public purpose (research for example) and a private benefit (commercial gain). Although people may have an instinctive reaction against the prospect of sharing anonymous patient-level data with commercial organisations, this research shows that views are nuanced where people learn about the role that commercial organisations might play in developing and deli..