Journal article

Quality of life assessment in esophageal atresia patients: a systematic review focusing on long-gap esophageal atresia

Sharman P Tan Tanny, Assia Comella, John M Hutson, Taher I Omari, Warwick J Teague, Sebastian K King

Journal of Pediatric Surgery | W B SAUNDERS CO-ELSEVIER INC | Published : 2019

Abstract

BACKGROUND: Children born with esophageal atresia (EA) have inherent abnormalities in esophageal motility which may impact upon patient and family Quality of Life (QoL). Currently, paucity of data exists for long-term outcomes of long-gap EA. We aimed to: (1) summarize QoL tools reported in the literature, focusing upon studies involving long-gap EA patients, and (2) compare QoL for long-gap versus non-long-gap EA patients. METHOD: We performed a systematic review of Cochrane Register of Controlled Trials, PubMed, EMBASE, and Ovid databases (January 1980-May 2018) in accordance with the PRISMA protocol. RESULT: Six studies were identified (536 patients total), and 419/536 (78%) patients comp..

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Grants

Awarded by National Health and Medical Research Council (NHMRC) Medical Research Postgraduate Scholarship


Funding Acknowledgements

Dr. Sharman Tan Tanny was supported by a National Health and Medical Research Council (NHMRC) Medical Research Postgraduate Scholarship (1168142) and an Australian Government Research Training Program Scholarship.