Journal article

Outcome measurement instruments for peripheral vascular malformations and an assessment of the measurement properties: a systematic review.

Sophie ER Horbach, Amber PM Rongen, Roy G Elbers, Chantal MAM van der Horst, Cecilia AC Prinsen, Phyllis I Spuls, undefined Collaborators OVAMA consensus group

Quality of Life Research | Published : 2020

Abstract

PURPOSE: The Outcome measures for vascular malformation (OVAMA) group reached consensus on the core outcome domains for the core outcome set (COS) for peripheral vascular malformations (venous, lymphatic and arteriovenous malformations). However, it is unclear which instruments should be used to measure these domains. Therefore, our aims were to identify all outcome measurement instruments available for vascular malformations, and to evaluate their measurement properties. METHODS: With the first literature search, we identified outcomes and instruments previously used in prospective studies on vascular malformations. A second search yielded studies on measurement properties of patient- and p..

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