Journal article

“We are very individual”: Anticipated effects on stroke survivors of using their person-generated health data (Preprint)

Gerardo Luis Dimaguila, Frances Batchelor, Mark Merolli, Kathleen Gray

JMIR Publications Inc.

Abstract

BACKGROUND Person-generated health data (PGHD) are produced by people when they use health information technologies. People who use PGHD may have changes in their engagement with their own health care, their relationship with their healthcare providers, and their sense of social support and connectedness. Research into evaluating those reported effects however, has not kept up; thus a method for developing patient-reported outcome measures (PROMs) of utilising PGHD, called the PROM-PGHD Development Method, was previously designed and applied to the exemplar case of Kinect-based stroke rehabilitation systems (K-SRS). A key step of the method ensures that the patient’s ..

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