From Expectations to Experiences: Consumer Autonomy and Choice in Personal Genomic Testing.
Jacqueline Savard, Chriselle Hickerton, Sylvia A Metcalfe, Clara Gaff, Anna Middleton, Ainsley J Newson
AJOB Empir Bioeth | Published : 2020
Background: Personal genomic testing (PGT) offers individuals genetic information about relationships, wellness, sporting ability, and health. PGT is increasingly accessible online, including in emerging markets such as Australia. Little is known about what consumers expect from these tests and whether their reflections on testing resonate with bioethics concepts such as autonomy.Methods: We report findings from focus groups and semi-structured interviews that explored attitudes to and experiences of PGT. Focus group participants had little experience with PGT, while interview participants had undergone testing. Recordings were transcribed and analyzed using thematic analysis. Findings were ..View full abstract
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Awarded by Wellcome Trust