Journal article

Contact us for more information: an analysis of public enquiries about stem cells

Amy Zarzeczny, Claire Tanner, Jan Barfoot, Clare Blackburn, Anna Couturier, Megan Munsie

Regenerative Medicine | FUTURE MEDICINE LTD | Published : 2019

Abstract

Aim: This study examines online enquiries received by two prominent stem cell science initiatives operating in different geographical jurisdictions. Materials & methods: Combined quantitative and qualitative analysis undertaken of internet-based queries (n = 1047) received by Stem Cells Australia and EuroStemCell from members of the public over a two-year period (May 2014-2016). Results: Findings reveal striking similarities between the two datasets and highlight the range of uncertainties, priorities and needs of those seeking information about stem cells online. Conclusion: Sustained and in-depth tailored guidance is needed to effectively meet the diverse stem cell-related information-base..

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University of Melbourne Researchers

Grants

Awarded by Australian Government, through the Australian Research Council's Special Research Initiatives scheme


Awarded by EuroStemCell - European Union


Awarded by European Union


Awarded by Neurostemcell Repair, Repair HD


Awarded by Wellcome Trust


Funding Acknowledgements

A Zarzeczny is grateful for funding support from the University of Regina President's Research Seed Grant and to the project's Research Assistants for their coding support. M Munsie and C Tanner are grateful for the in-kind support of the Center for Stem Cell Systems at The University of Melbourne. C Tanner is an Associate Investigator on the Stem Cells Australia Special Research Initiative. M Munsie receives funding from the Australian Research Council to support her activities as Outreach and Policy Manager at Stem Cells Australia and as a Chief Investigator in this Special Research Initiative. Stem Cells Australia was established in 2011 with the support of the Australian Government, through the Australian Research Council's Special Research Initiatives scheme (SR1101002). M Munsie is affiliated with the International Society for Stem Cell Research, Australasian Society for Stem Cell Research and International Society for Cellular Therapy. J Barfoot, A Couturier and C Blackburn received funding from EuroStemCell to support their roles within the project (www.eurostemcell.org/about-eurostemcell).For the period in which data were collected, the EuroStemCell project was funded by the European Union Horizon 2020 Programme (H2020) via the coordinating action project 'EuroStemCell' under grant agreement number 652796. EuroStemCell has received European Union Framework 6 and Framework 7 funding under grant agreements 503005 and 241878 respectively and has been supported by the EC-funded research consortia, ESTools, OptiStem, EuroSyStem, NeuroStemCell, ThymiStem, HumEN, PluriMes, Neurostemcell Repair, Repair HD, and INTENS under grant agreement Nos 018739 (ESTools), 223098 (OptiStem), 200720 (EuroSyStem), 222943 (NeuroStemCell), 602587 (ThymiStem), 602587 (HumEn), 602423 (PluriMes), 602278 (Neurostemcell Repair), 602245 (Repair-HD), 668294 (INTENS). C Blackburn, J Barfoot and A Couturier are also grateful for support from a Wellcome Trust ISSF3 award from the University of Edinburgh. The authors have no other relevant affiliations or financial involvement with any organization or entity with a financial interest in or financial conflict with the subject matter or materials discussed in the manuscript apart from those disclosed.