Journal article
Clinical practice with steroid therapy for Duchenne muscular dystrophy: An expert survey in Asia and Oceania
F Takeuchi, H Nakamura, N Yonemoto, H Komaki, RL Rosales, AJ Kornberg, AH Bretag, C Dejthevaporn, KJ Goh, YJ Jong, DS Kim, SV Khadilkar, D Shen, KT Wong, J Chai, SHS Chan, S Khan, O Ohnmar, I Nishino, S Takeda Show all
Brain and Development | ELSEVIER | Published : 2020
Abstract
Background: Several studies on clinical practice for Duchenne muscular dystrophy (DMD) have been conducted in Western countries. However, there have been only a few similar studies in Asia and Oceania. Here, we investigate the steroid therapy-related clinical practice for DMD among the local experts. In 2015, we conducted a DMD expert survey in Asia and Oceania to acquire information regarding patients with DMD and to assess current clinical practice with the cooperation of Asian and Oceanian Myology Centre, a neuromuscular disease research network. Results: We obtained survey responses from 87 out of 148 clinicians (62%) from 13 countries and regions. In China, 1385 DMD patients were follow..
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