Why genomics researchers are sometimes morally required to hunt for secondary findings
Julian J Koplin, Julian Savulescu, Danya F Vears
BMC Medical Ethics | BMC | Published : 2020
BACKGROUND: Genomic research can reveal 'unsolicited' or 'incidental' findings that are of potential health or reproductive significance to participants. It is widely thought that researchers have a moral obligation, grounded in the duty of easy rescue, to return certain kinds of unsolicited findings to research participants. It is less widely thought that researchers have a moral obligation to actively look for health-related findings (for example, by conducting additional analyses to search for findings outside the scope of the research question). MAIN TEXT: This paper examines whether there is a moral obligation, grounded in the duty of easy rescue, to actively hunt for genomic secondary ..View full abstract
Awarded by Wellcome Trust
JS acknowledges the support of Wellcome Trust Grant 203132/Z/16/Z and 104848/Z/14/Z. JK, JS and DV acknowledge the support of the Victorian State Government through the Operational Infrastructure Support Program. These funding bodies did not play a role in the design of the study, data collection, data analysis, or data interpretation.