Journal article

Why genomics researchers are sometimes morally required to hunt for secondary findings

JJ Koplin, J Savulescu, DF Vears

BMC Medical Ethics | BMC | Published : 2020

Abstract

Background: Genomic research can reveal 'unsolicited' or 'incidental' findings that are of potential health or reproductive significance to participants. It is widely thought that researchers have a moral obligation, grounded in the duty of easy rescue, to return certain kinds of unsolicited findings to research participants. It is less widely thought that researchers have a moral obligation to actively look for health-related findings (for example, by conducting additional analyses to search for findings outside the scope of the research question). Main text: This paper examines whether there is a moral obligation, grounded in the duty of easy rescue, to actively hunt for genomic secondary ..

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University of Melbourne Researchers

Grants

Awarded by State Government of Victoria


Funding Acknowledgements

JS acknowledges the support of Wellcome Trust Grant 203132/Z/16/Z and 104848/Z/14/Z. JK, JS and DV acknowledge the support of the Victorian State Government through the Operational Infrastructure Support Program. These funding bodies did not play a role in the design of the study, data collection, data analysis, or data interpretation.