Journal article

Health-related quality of life and upper-limb impairment in children with cerebral palsy: developing a mapping algorithm

Utsana Tonmukayakul, Christine Imms, Cathrine Mihalopoulos, Dinah Reddihough, Rob Carter, Brendan Mulhern, Gang Chen

Developmental Medicine & Child Neurology | WILEY | Published : 2020

Abstract

AIM: To: (1) investigate the relationship between upper-limb impairment and health-related quality of life (HRQoL) for children with cerebral palsy and (2) develop a mapping algorithm from the Cerebral Palsy Quality of Life Questionnaire for Children (CPQoL-Child) onto the Child Health Utility 9D (CHU9D) measure. METHOD: The associations between physical and upper-limb classifications and HRQoL of 76 children (40 females, 36 males) aged 6 to 15 years (mean age 9 years 7 months [SD 3y]) were assessed. Five statistical techniques were developed and tested, which predicted the CHU9D scores from the CPQoL-Child total/domain scores, age, and sex. RESULTS: Most participants had mild impairments. T..

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Grants

Awarded by Centre of Research Excellence in Cerebral Palsy (NHMRC)


Awarded by Australian Catholic University


Awarded by Centre of Research Excellence in Cerebral Palsy


Funding Acknowledgements

We thank Sophy Shih for her support in drafting the MITrial study protocol, ethics applications, and data acquisition. We thank Alice Ames for her assistance with database access and support. Utsana Tonmukayakul received a PhD scholarship from the Centre of Research Excellence in Cerebral Palsy (NHMRC no. APP1057997). The upper-limb trial orthoses were funded through a five-year grant from the Australian Catholic University (no. 2013000413), a small grant from the Princess Margaret Hospital Foundation and support from the Centre of Research Excellence in Cerebral Palsy (no. APP1057997), and in-kind support from the Princess Margaret Hospital, The Ability Centre, Monash Children's Hospital, the Royal Children's Hospital, and the Cerebral Palsy Alliance. The authors have stated that they had no interests that might be perceived as posing a conflict or bias.