Journal article

Long-term Out-of-Hospital Health Care Use for Fontan Survivors Across Childhood

Li Huang, Kim M Dalziel, Karin du Plessis, David S Winlaw, Rachael Cordina, Andreas Pflaumer, Robert N Justo, Gavin R Wheaton, Andrew Bullock, Charlotte E Verrall, Yves D'Udekem

The Annals of Thoracic Surgery | ELSEVIER SCIENCE INC | Published : 2020


BACKGROUND: Surgery is the cornerstone of treatment for single-ventricle patients, but life just begins for most when the staged procedures are completed. A package of care, including primary care, out-of-hospital specialist visits, and medication, is required for patients living with Fontan. This study quantified the current state of out-of-hospital health care use across childhood for Fontan patients using evidence from Australia. METHODS: Patients recruited from the Fontan Registry were linked with the administrative Medicare (universal health insurance) data. Frequency of medical and pharmaceutical care and costs were estimated. RESULTS: Data for 115 patients with 12,726 medical and 8,33..

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Awarded by National Health and Medical Research Council

Funding Acknowledgements

The authors thank the patient participants of the Australian and New Zealand Fontan Registry for their support in this project and acknowledge the support provided to the Murdoch Children's Research Institute by the Victorian Government's Operational Infrastructure Program. This work was supported by National Health and Medical Research Council partnership grant (1076849). Dr Yves d'Udekem is a Clinician Practitioner Fellow of the National Health and Medical Research Council (1082186). The authors had freedom of investigation and full control of the study.