Journal article

Patient-reported outcomes in melanoma survivors at 1, 3 and 5 years post-diagnosis: a population-based cross-sectional study

Karolina Lisy, Julia Lai-Kwon, Andrew Ward, Shahneen Sandhu, Nadine A Kasparian, Julie Winstanley, Frances Boyle, David Gyorki, Karen Lacey, Jim Bishop, Michael Jefford

Quality of Life Research | SPRINGER | Published : 2020

Abstract

PURPOSE: There is a lack of population-based data describing patient reported outcomes (PROs) in melanoma survivors which could guide the development of interventions and resources. This study assessed overall quality of life (QoL), self-reported symptoms and unmet information needs in melanoma survivors 1, 3 or 5 years post-diagnosis. METHODS: A cross-sectional postal survey was conducted in Victoria, Australia, with eligible melanoma survivors identified from a population-based cancer registry. Patient-reported outcome measures included the EuroQoL 5-Dimension 5-Level (EQ-5D-5L), and self-reported symptoms, difficulties and information needs. Associations between demographic, disease and c..

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