The significance and expectations of HIV cure research among people living with HIV in Australia
Jennifer Power, Gary W Dowsett, Andrew Westle, Joseph D Tucker, Sophie Hill, Jeremy Sugarman, Sharon R Lewin, Graham Brown, Jayne Lucke
PLOS ONE | PUBLIC LIBRARY SCIENCE | Published : 2020
Most people living with HIV (PLHIV) with reliable access to antiretroviral treatment (ART) have a life expectancy similar to uninfected populations. Despite this, HIV can negatively affect their social and psychological wellbeing. This study aimed to enhance understanding of the expectations PLHIV hold for HIV cure research and the implications this has for HIV cure research trials. We interviewed 20 Australian PLHIV about their expectations for HIV cure research outcomes and the impact a potential cure for HIV may have on their everyday lives. Data were analysed thematically, using both inductive and deductive approaches. The significance of a cure for HIV was expressed by participants as s..View full abstract
Dowsett, G, Lucke, J, Power, J, Wallace, J, Ellard, J, Richmond, J, Lewin, S, Hill, S, Tucker, J, Slavin, S and Cogle, A. 'An HIV Cure: ethical and social consequences of cure-focused research', Building Healthy Communities, Research Focus Area Grant, La Trobe University ($29,730)We are grateful to all people living with HIV who took time to participate in this study. This project was endorsed and supported by the Australian Federation of AIDS Organisations and the National Association of People with HIV Australia. This paper was produced with assistance from Henry von Doussa. Other collaborators on the project were Jack Wallace, Jacquie Richmond and Sean Slavin.