Journal article

Peer Connect Service for people with pulmonary fibrosis in Australia: Participants' experiences and process evaluation

Gabriella Tikellis, Joanna YT Lee, Tamera J Corte, Jamie Maloney, Michael Bartlett, Tonia Crawford, Ian N Glaspole, Nicole Goh, Kelcie Herrmann, Alison J Hey-Cunningham, Greg Keir, Yet H Khor, John Price, Debra G Sandford, Lissa Spencer, Alan Teoh, Jennifer Walsh, Susanne Webster, Anne E Holland

Respirology | WILEY | Published : 2020

Abstract

BACKGROUND AND OBJECTIVE: People living with pulmonary fibrosis (PF) report unmet needs for information and support. Lung Foundation Australia (LFA) have developed the Peer Connect Service to facilitate telephone support for people with PF across Australia. This project documented the experiences of participants and the resources required to support the service. METHODS: Consenting participants took part in semi-structured interviews by telephone. Primary peers (peers who agreed to initiate contact) and secondary peers (eligible patients who sought a peer match) were interviewed. Thematic analysis was undertaken by two independent researchers. Data were collected on the number of matches and..

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Grants

Awarded by National Health and Medical Council (Australia) Centre of Research Excellence in Pulmonary Fibrosis


Funding Acknowledgements

This work was funded by the National Health and Medical Council (Australia) Centre of Research Excellence in Pulmonary Fibrosis GNT1116371. Support was also provided by CRE-PF and Australian IPF Registry partners, Lung Foundation Australia and industry sponsors including Boehringer Ingelheim, Roche Products Pty Limited, Galapagos and Biogen.