Journal article

Clinical application of the PedsQL Epilepsy Module (PedsQL-EM) in an ambulatory pediatric epilepsy setting

Danielle Hulse, A Simon Harvey, Jeremy L Freeman, Mark T Mackay, Gabriel Dabscheck, Sarah M Barton

Epilepsy & Behavior | ACADEMIC PRESS INC ELSEVIER SCIENCE | Published : 2020


INTRODUCTION: Children with epilepsy report lower health-related quality of life (QOL) compared with healthy children and those with other chronic disorders. This study piloted the recently published Pediatric Quality of Life Inventory (PedsQL) Epilepsy Module (PedsQL-EM) in an ambulatory setting and studied epilepsy-related factors contributing to QOL in children with epilepsy. METHODS: Children with epilepsy aged 8-18 years who were ambulant and verbal were recruited from pediatric neurology clinics. Children and their caregivers completed age-appropriate versions of the PedsQL-EM (8-12 or 13-18 years) in the clinic waiting area. Treating neurologists completed medical questionnaires about..

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Funding Acknowledgements

This research was undertaken as part of a Medical Degree research project by Danielle Hulse, through the University of Melbourne. Murdoch Children's Research Institute researchers were supported by the Victorian Government's Operational Infrastructure Support Program. This research did not receive any specific grant from funding agencies in the public, commercial, or not-for-profit sectors.