Journal article
The lived experience of chronic pain and dyskinesia in children and adolescents with cerebral palsy
CT McKinnon, JH White, PE Morgan, GC Antolovich, CH Clancy, MC Fahey, AR Harvey
BMC Pediatrics | BMC | Published : 2020
Abstract
Background: To explore the lived experience of chronic pain and dyskinesia in children and adolescents with cerebral palsy. Methods: A convergent parallel mixed methods design was undertaken. First, a quantitative cross-sectional study of participants able to self-report their quality of life was undertaken. This study characterised pain chronicity, intensity, body locations, and quality of life. Second, semi-structured interviews were undertaken with a subset of children and adolescents experiencing chronic pain. Results: Twenty-five children and adolescents took part in the cross-sectional study, 23 of whom experienced chronic pain and 13 of moderate intensity. Pain was often located in mu..
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Funding Acknowledgements
This research was completed as part of CM's PhD. To undertake her PhD CM received a salary via an Australian Government Research Training Program Scholarship and Centre for Research Excellence in Cerebral Palsy, Murdoch Children's Research Institute, Top-Up Scholarship. AH receives a salary via National Health and Medical Research Council Translating Research into Practice Fellowship 2018. CM also received a Career Development Grant from The Research Foundation, Cerebral Palsy Alliance 2017, which funded the salary for hired research assistants used for the collection of survey data within this study. The sole responsibility for the content of this study lies with the authors. Funding bodies were not directly involved in the design of the study or in the collection, analysis, interpretation of the data or in writing the manuscript. This project was supported by Murdoch Children's Research Institute and the Victorian Governments Operational Infrastructure Support Program.