Journal article

The lived experience of chronic pain and dyskinesia in children and adolescents with cerebral palsy.

Clare T McKinnon, Jennifer H White, Prue E Morgan, Giuliana C Antolovich, Catherine H Clancy, Michael C Fahey, Adrienne R Harvey

BMC Pediatr | Published : 2020

Abstract

BACKGROUND: To explore the lived experience of chronic pain and dyskinesia in children and adolescents with cerebral palsy. METHODS: A convergent parallel mixed methods design was undertaken. First, a quantitative cross-sectional study of participants able to self-report their quality of life was undertaken. This study characterised pain chronicity, intensity, body locations, and quality of life. Second, semi-structured interviews were undertaken with a subset of children and adolescents experiencing chronic pain. RESULTS: Twenty-five children and adolescents took part in the cross-sectional study, 23 of whom experienced chronic pain and 13 of moderate intensity. Pain was often located in mu..

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