Journal article

Mobile arm supports in Duchenne muscular dystrophy: a pilot study of user experience and outcomes

Ashlee Cruz, Libby Callaway, Melinda Randall, Monique Ryan

Disability and Rehabilitation Assistive Technology | TAYLOR & FRANCIS INC | Published : 2020

Abstract

Purpose: This pilot study examined whether two different types of non-powered mobile arm supports (MAS) enhanced upper limb function and independence with activities of daily living (ADLs) in people with Duchenne muscular dystrophy (DMD).Method: A mixed methods cross-sectional design was used. Participants were four males with DMD, aged 16 to 20 years (M = 18.25 years). Two participants were current MAS users, and two had previously used MAS. To explore experiences of MAS use, semi-structured interviews were undertaken, then transcribed verbatim and analysed thematically. To measure the impact of MAS on arm function and ADLs, participants using MAS completed the Performance of the Upper Limb..

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Grants

Funding Acknowledgements

The authors thank Muscular Dystrophy Australia for supporting this study through the provision of gift vouchers for study participants. The authors also thank the individuals and their family members who participated in this study.