Measures used to quantify participation in childhood disability and their alignment with the family of participation-related constructs: a systematic review

Abstract

Aim: We aimed to identify measures used to assess the participation of disabled children and to map the measures’ content to the family of participation-related constructs (fPRC) to inform future research and practice. Method: Six databases were searched to identify measures used to assess participation in health, psychology, and education research. Included studies involved children aged 0 to 18 years with a permanent impairment or developmental disability and reported use of a quantitative measure of participation. A second search sought relevant literature about each identified measure (including published manuals) to allow a comprehensive understanding of the measure. Measurement constru..