Journal article

Measures used to quantify participation in childhood disability and their alignment with the family of participation-related constructs: a systematic review

Brooke Adair, Anna Ullenhag, Peter Rosenbaum, Mats Granlund, Deb Keen, Christine Imms

DEVELOPMENTAL MEDICINE AND CHILD NEUROLOGY | WILEY | Published : 2018

Abstract

AIM: We aimed to identify measures used to assess the participation of disabled children and to map the measures' content to the family of participation-related constructs (fPRC) to inform future research and practice. METHOD: Six databases were searched to identify measures used to assess participation in health, psychology, and education research. Included studies involved children aged 0 to 18 years with a permanent impairment or developmental disability and reported use of a quantitative measure of participation. A second search sought relevant literature about each identified measure (including published manuals) to allow a comprehensive understanding of the measure. Measurement constru..

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Grants

Awarded by National Health and Medical Research Council


Funding Acknowledgements

We thank Koki Miyazaki and Natalie Amos for their assistance in screening and data extraction. This project was undertaken under the auspices of the National Health and Medical Research Council-funded Centre for Research Excellence in Cerebral Palsy (APP1057997). The authors have stated that they had no interests that might be perceived as posing a conflict or bias.