Journal article

Leisure participation-preference congruence of children with cerebral palsy: a Children's Assessment of Participation and Enjoyment International Network descriptive study

Christine Imms, Gillian King, Annette Majnemer, Lisa Avery, Lisa Chiarello, Robert Palisano, Margo Orlin, Mary Law

DEVELOPMENTAL MEDICINE AND CHILD NEUROLOGY | WILEY | Published : 2017

Abstract

AIM: To examine participation-preference congruence, regional differences in participation-preference congruence, and predictors of whether children with cerebral palsy participate in preferred activities. METHOD: The sample (n=236) included 148 males and 88 females aged 10 to 13 years, living in Victoria, Australia (n=110), Ontario (n=80), or Quebec (n=46), Canada. Ninety-nine (41.9%) were classed at Gross Motor Function Classification System (GMFCS) level I; 89 (37.7%) at GMFCS level II/III; and 48 (20.3%) at GMFCS level IV/V. Participants completed the Children's Assessment of Participation and Enjoyment and Preferences for Activity of Children questionnaires. Regional comparisons were pe..

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Funding Acknowledgements

The Children's Assessment of Participation and Enjoyment (CAPE) Network is comprised of teams of researchers who have used the CAPE to examine the participation of children with CP in Australia, Canada, and the USA. CAPE International Collaborative Network acknowledges investigators and funding sources of the original research projects included in this study. Ethical approval was obtained for each original study, and for the currently reported study, from the following Human Research Ethics Committees (HREC): (1) Royal Children's Hospital Human Research Ethics Committee (HREC 25096) and La Trobe University Human Ethics Committee (HEC05-153) (Imms et al. [ Australia]); (2) McMaster University's Research Ethics Board(03-078 and 99-105) (King et al. [Canada]); ( 3) The Montreal Children's Hospital Institutional Review Board (MCH-002-07 [school-age participants]; PED-05-083 [adolescent participants]) and Centre de recherche interdisciplinaire en readaptation du Montreal metropolitain (CRIR-415-0209) (Majnemer et al. [Canada]). Funds in support of the currently reported project were provided by investigators from various sources, including royalties received from sales of the CAPE/PAC; and Canada Research Chair funds from the Canadian Institutes of Health Research in support of the Canada Research Chair in Optimal Care for Children with Disabilities held by GK. The funding bodies had no role in the conduct of the study, interpretation, or reporting of results. The authors have stated that they had no interests which may be perceived as posing a conflict or bias.