Journal article
Baseline characteristics of patients with atypical haemolytic uraemic syndrome (aHUS): The Australian cohort in a global aHUS registry
J Soraru, N Isbel, G Wong, PT Coates, M Mantha, A Abraham, R Juneja, D Hsu, F Brown, B Bose, D Mudge, R Carroll, J Kausman, P Hughes, T Barbour, A Durkan, P Mount, D Lee, N Larkins, D Ranganathan Show all
Nephrology | WILEY | Published : 2020
DOI: 10.1111/nep.13722
Abstract
Aims: To describe the baseline characteristics and treatment of Australian patients diagnosed with atypical haemolytic uraemic syndrome (aHUS) reported to the Global aHUS Registry. Methods: Descriptive analysis of the Australian cohort with aHUS (n = 106) was undertaken for demographics, disease characteristics and prior treatment with eculizumab; comparing with the global cohort (n = 1688) for certain pre-specified disease characteristics. Results: In Australia, almost two-thirds of patients diagnosed with aHUS were female and over 80% of patients were Caucasians, with similar proportions reported in the global cohort. Less than 6% of patients in the Australia and global cohorts were report..
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Funding Acknowledgements
Health Department of Western Australia, Grant/Award Number: Raine Foundation Clinical Research Fellowship; National Health and Medical Research Council, Grant/Award Number: Career Development Fellowship; Royal Australian College of Physicians, Grant/Award Number: Jacquot Research Foundation; University of Western Australia, Grant/Award Number: Raine Foundation Clinical Research Fellowship; Alexion Pharmaceuticals; Alexion Pharmaceuticals, Grant/Award Number: Honoraria for Advisory Board Membership and Educat