Experiences and unmet needs of family members requested to donate haematopoietic stem cells to an ill relative: findings from a prospective multi-centre study
Nienke Zomerdijk, Jane Turner, Geoffrey R Hill, David Gottlieb
SUPPORTIVE CARE IN CANCER | SPRINGER | Published : 2020
BACKGROUND: Despite well-documented physical effects of haematopoietic stem cell (HSC) donation, far less attention has been focused on the psychosocial impact for family donors. This study aimed to better understand the psychosocial aspects of HSC donation by family members, focusing, in particular on their needs for information and supportive care. METHODS: Thirty-one adult HSC family donors from two clinical hospitals were interviewed before, during and 1 month after HSC donation. Interviews explored ambivalence, motivation, perceived pressure, preparedness, the donor-recipient relationship, information and support received and suggestions for improvement. RESULTS: Three main themes about..View full abstract
This work was supported by the Australian Government Research Training Program Scholarship, the Royal Brisbane & Women's Hospital Foundation Postgraduate Scholarship and the Royal Brisbane & Women's Hospital Foundation Diamond Care Grant.