Patient and care partner views on exercise and structured physical activity for people with Progressive Supranuclear Palsy
Susan C Slade, Christopher Bruce, Jennifer L McGinley, Bastiaan R Bloem, Meg E Morris
PLOS ONE | PUBLIC LIBRARY SCIENCE | Published : 2020
INTRODUCTION: Progressive Supranuclear Palsy (PSP) is a debilitating form of atypical Parkinsonism. People living with PSP experience movement disorders affecting walking, balance and eye movements. The role of exercise in optimising movement remains unclear. AIMS: To identify beliefs about exercise and structured physical activity through the experience of people with PSP. METHODS: Using a phenomenological theoretical framework, qualitative methods were employed to obtain the views of people living with PSP, and their care partners, by in-depth interviews. Questions derived from a systematic review and expert opinions guided the interviews which were audio-recorded, transcribed and de-ident..View full abstract
Funding was awarded to Dr Susan Slade from Parkinson's Victoria (the Argyrou Family Foundation) and La Trobe University, Australia.