Patient and care partner views on exercise and structured physical activity for people with Progressive Supranuclear Palsy

Abstract

Introduction Progressive Supranuclear Palsy (PSP) is a debilitating form of atypical Parkinsonism. People living with PSP experience movement disorders affecting walking, balance and eye movements. The role of exercise in optimising movement remains unclear. Aims To identify beliefs about exercise and structured physical activity through the experience of people with PSP. Methods Using a phenomenological theoretical framework, qualitative methods were employed to obtain the views of people living with PSP, and their care partners, by in-depth interviews. Questions derived from a systematic review and expert opinions guided the interviews which were audio-recorded, transcribed and de-identifi..