Journal article

Rethinking Strategies for Positive Newborn Screening Result (NBS plus ) Delivery (ReSPoND): a process evaluation of co-designing interventions to minimise impact on parental emotional well-being and stress

Jane Chudleigh, Jim Bonham, Mandy Bryon, Jill Francis, Louise Moody, Steve Morris, Alan Simpson, Fiona Ulph, Kevin Southern

PILOT AND FEASIBILITY STUDIES | BMC | Published : 2019

Abstract

Background: Newborn blood spot (NBS) screening seeks to prevent ill health, disability and death through early diagnosis and effective intervention. Each year, around 10,000 parents of babies born in England are given a positive NBS result indicating their child may be affected or carriers of one of the nine conditions currently screened for. Despite guidance, these results are inconsistently delivered to parents across geographical regions. There is evidence that many parents are dissatisfied with how NBS results are communicated to them and that poor communication practices can lead to various negative sequelae. The purpose of this study is to co-design, implement and undertake a process e..

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University of Melbourne Researchers

Grants

Awarded by National Institute for Health Research Health Services and Delivery Research (NIHR HSDR) Programme


Funding Acknowledgements

This project was funded by the National Institute for Health Research Health Services and Delivery Research (NIHR HS&DR) Programme (project number 16/52/25). Visit the HS&DR website for more information https://www.journalslibrary.nihr.ac.uk/programmes/hsdr/165225/#/.