Journal article
Implementation considerations for offering personal genomic risk information to the public: A qualitative study
AK Smit, G Reyes-Marcelino, L Keogh, K Dunlop, AJ Newson, AE Cust
BMC Public Health | BMC | Published : 2020
Open access
Abstract
Background: Genomic risk information, based on common genomic susceptibility variants associated with risk of complex diseases such as cancer, may be incorporated into personalised prevention and screening strategies. We aimed to engage with members of the public, who are important stakeholders in this process, to further inform program development and other implementation outcomes such as acceptability and appropriateness. Methods: Semi-structured interviews were undertaken with 30 participants (aged 24-69 years, 50% female) recruited from a pilot trial in which they received personalised genomic risk information for melanoma. We explored participants' views and attitudes towards offering g..
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Awarded by Sydney West Translational Cancer Research Centre
Funding Acknowledgements
This study received funding from Sydney Catalyst Translational Cancer Research Centre and The University of Sydney Cancer Strategic Priority Area for Research Collaboration (SPARC) Implementation Scheme. AK Smit received a Research Training Program (RTP) Stipend Scholarship and a Merit Top Up Scholarship from the University of Sydney, and a Melanoma Institute Australia Postgraduate Research Scholarship. AE Cust received a Career Development Fellowship from the National Health and Medical Research Council of Australia (NHMRC; 1147843). These funding bodies had no role in the design, development, conduct, analysis or manuscript writing.