Journal article
COVID-19 in people with multiple sclerosis: A global data sharing initiative
LM Peeters, T Parciak, C Walton, L Geys, Y Moreau, E De Brouwer, D Raimondi, A Pirmani, T Kalincik, G Edan, S Simpson-Yap, L De Raedt, Y Dauxais, C Gautrais, PR Rodrigues, L McKenna, N Lazovski, J Hillert, L Forsberg, T Spelman Show all
Multiple Sclerosis Journal | SAGE PUBLICATIONS LTD | Published : 2020
Abstract
Background: We need high-quality data to assess the determinants for COVID-19 severity in people with MS (PwMS). Several studies have recently emerged but there is great benefit in aligning data collection efforts at a global scale. Objectives: Our mission is to scale-up COVID-19 data collection efforts and provide the MS community with data-driven insights as soon as possible. Methods: Numerous stakeholders were brought together. Small dedicated interdisciplinary task forces were created to speed-up the formulation of the study design and work plan. First step was to agree upon a COVID-19 MS core data set. Second, we worked on providing a user-friendly and rapid pipeline to share COVID-19 d..
View full abstractGrants
Funding Acknowledgements
We would like to thank the sponsors of the Multiple Sclerosis Data Alliance and the Multiple Sclerosis International Federation for providing financial support. Special thanks goes to QMENTA for kindly providing us with the central platform. The authors thank everyone who actively participated in any of the global teleconferences, brainstorms and task force meetings. We would like to thank all the PwMS and healthcare professionals who already contributed to the different data collection efforts. We also want to thank Jan Samyn, Margo Heremans, Angela Hooper, Jorina Nickmans, Gunther Meyer and Victoria Gilbert to support us with ensuring the operational power we needed to speed-up our progress.