Journal article

Pain in children with dyskinetic and mixed dyskinetic/spastic cerebral palsy

Clare T McKinnon, Prue E Morgan, Giuliana C Antolovich, Catherine H Clancy, Michael C Fahey, Adrienne R Harvey



AIM: To evaluate pain prevalence and characteristics in children and adolescents with predominant dyskinetic and mixed (dyskinetic/spastic) cerebral palsy (CP) motor types. METHOD: Seventy-five participants with a diagnosis of CP and confirmed dyskinetic or mixed (dyskinetic/spastic) motor type took part in a multisite cross-sectional study. The primary outcome was carer-reported pain prevalence (preceding 2wks) measured using the Health Utilities Index-3. Secondary outcomes were chronicity, intensity, body locations, quality of life, and activity impact. RESULTS: Mean participant age was 10 years 11 months (SD 4y 2mo, range 5-18y). There were 44 males and 31 females and 37 (49%) had predomi..

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Funding Acknowledgements

The authors thank Adrienne Wiebusch (consumer advisor), Mahek Dudhwala (Victorian Paediatric Rehabilitation Service, Monash Children's Hospital), Kate Willoughby (Royal Children's Hospital), and Adam Scheinberg (Victorian Paediatric Rehabilitation Service, Royal Children's Hospital) for their contributions and in-kind support of this study.Clare McKinnon is funded to complete her PhD by the Australian Government Research Training Program Scholarship and Centre of Research Excellence in Cerebral Palsy, Murdoch Children's Research Institute, Top-Up Scholarship. She also received a Career Development Grant from The Research Foundation, Cerebral Palsy Alliance 2017, which assisted in funding this study. Adrienne Harvey is supported by a National Health and Medical Research Council Translating Research into Practice Fellowship 2018. This project was supported by the Murdoch Children's Research Institute and the `Victorian Governments' Operational Infrastructure Support Program. No potential conflict of interest is reported by the authors.