Ethical Considerations for Participatory Health through Social Media: Healthcare Workforce and Policy Maker Perspectives.
Octavio Rivera-Romero, Stathis Konstantinidis, Kerstin Denecke, Elia Gabarrón, Carolyn Petersen, Mowafa Househ, Mark Merolli, Miguel Ángel Mayer
IMIA Yearbook of Medical Informatics | Published : 2020
OBJECTIVES: To identify the different ethical issues that should be considered in participatory health through social media from different stakeholder perspectives (i.e., patients/service users, health professionals, health information technology (If) professionals, and policy makers) in any healthcare context. METHODS: We implemented a two-round survey composed of open ended questions in the first round, aggregated into a list of ethical issues rated for importance by participants in the second round, to generate a ranked list of possible ethical issues in participatory health based on healthcare professionals' and policy makers' opinions on both their own point of view and their beliefs fo..View full abstract