Gaps in the Care of Familial Hypercholesterolaemia in Australia: First Report From the National Registry
Jing Pang, David R Sullivan, David L Hare, David M Colquhoun, Timothy R Bates, Jacqueline DM Ryan, Warrick Bishop, John R Burnett, Damon A Bell, Leon A Simons, Sam Mirzaee, Karam M Kostner, Paul J Nestel, Andrew M Wilson, Richard C O'Brien, Edward D Janus, Peter M Clifton, Justin J Ardill, Dick C Chan, Frank van Bockxmeer Show all
HEART LUNG AND CIRCULATION | ELSEVIER SCIENCE INC | Published : 2021
BACKGROUND: Familial hypercholesterolaemia (FH) is under-diagnosed and under-treated worldwide, including Australia. National registries play a key role in identifying patients with FH, understanding gaps in care and advancing the science of FH to improve care for these patients. METHODS: The FH Australasia Network has established a national web-based registry to raise awareness of the condition, facilitate service planning and inform best practice and care services in Australia. We conducted a cross-sectional analysis of 1,528 FH adults enrolled in the registry from 28 lipid clinics. RESULTS: The mean age at enrolment was 53.4±15.1 years, 50.5% were male and 54.3% had undergone FH genetic t..View full abstract
The registry received significant in-kind support from members of the FHAN and was also, in part, supported by grants from Amgen, MSD and Sanofi. JP was supported by a WAHTN Early Career Fellowship and the Australian Government's Medical Research Future Fund.