Journal article
Gaps in the Care of Familial Hypercholesterolaemia in Australia: First Report From the National Registry
J Pang, DR Sullivan, DL Hare, DM Colquhoun, TR Bates, JDM Ryan, W Bishop, JR Burnett, DA Bell, LA Simons, S Mirzaee, KM Kostner, PJ Nestel, AM Wilson, RC O'Brien, ED Janus, PM Clifton, JJ Ardill, DC Chan, F van Bockxmeer Show all
Heart Lung and Circulation | ELSEVIER SCIENCE INC | Published : 2021
Abstract
Background: Familial hypercholesterolaemia (FH) is under-diagnosed and under-treated worldwide, including Australia. National registries play a key role in identifying patients with FH, understanding gaps in care and advancing the science of FH to improve care for these patients. Methods: The FH Australasia Network has established a national web-based registry to raise awareness of the condition, facilitate service planning and inform best practice and care services in Australia. We conducted a cross-sectional analysis of 1,528 FH adults enrolled in the registry from 28 lipid clinics. Results: The mean age at enrolment was 53.4±15.1 years, 50.5% were male and 54.3% had undergone FH genetic t..
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Funding Acknowledgements
The registry received significant in-kind support from members of the FHAN and was also, in part, supported by grants from Amgen, MSD and Sanofi. JP was supported by a WAHTN Early Career Fellowship and the Australian Government's Medical Research Future Fund.