Journal article
Quality of life in parents of seriously Ill/injured children: a prospective longitudinal study
Ella Graj, Frank Muscara, Vicki Anderson, Stephen Hearps, Maria McCarthy
QUALITY OF LIFE RESEARCH | SPRINGER | Published : 2020
Abstract
PURPOSE: Parents of children with serious childhood illness or injury (SCII) are at risk of experiencing poor quality of life (QoL). This study investigated the nature of parent QoL at the time of child diagnosis and seven months post-diagnosis, the change in parent QoL over time, and early factors influencing short-term and longer-term parent QoL. METHODS: The sample was drawn from a prospective longitudinal cohort study conducted within a paediatric hospital setting. Participants comprised 223 parents of 167 children diagnosed with a life-threatening illness and hospitalised in the cardiology, oncology, or intensive care departments. Examined data included QoL ratings completed by parents ..
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Funding Acknowledgements
This work was funded by the Pratt Foundation, and was supported by the Victorian Government's Operational Infrastructure Support Program. None of the project funders had any involvement in the design and conduct of the study; collection, management, analysis, and interpretation of the data; preparation, review, or approval of the manuscript; and decision to submit the manuscript for publication. There are no financial relationships or issues to disclose.