Journal article

'We are very individual': anticipated effects on stroke survivors of using their person-generated health data.

Gerardo Luis Dimaguila, Frances Batchelor, Mark Merolli, Kathleen Gray

Journal of Innovation in Health Informatics | BMJ Publishing Group | Published : 2020


BACKGROUND: Person-generated health data (PGHD) are produced by people when they use health information technologies. People who use PGHD may experience changes in their health and care process, such as engagement with their own healthcare, and their sense of social support and connectedness. Research into evaluating those reported effects has not kept up; thus, a method for measuring PGHD outcomes was previously designed and applied to the exemplar case of Kinect-based stroke rehabilitation systems. A key step of the method ensures that the patient's voice is included. Allowing stroke survivors to participate in the development and evaluation of health services and treatment can inform heal..

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Funding Acknowledgements

The authors would like to acknowledge the staff of the metropolitan Melbourne health service and Headway ABI. GLD would like to acknowledge the Melbourne School of Engineering through which his research scholarship is provided; and his organisational sponsor, Newman College (University of Melbourne).