Journal article

The protocol of a clinical quality registry for dementia and mild cognitive impairment (MCI): the Australian dementia network (ADNeT) Registry

Xiaoping Lin, Kasey Wallis, Stephanie A Ward, Henry Brodaty, Perminder S Sachdev, Sharon L Naismith, Karolina Krysinska, John McNeil, Christopher C Rowe, Susannah Ahern

BMC Geriatrics | BMC | Published : 2020

Abstract

BACKGROUND: Dementia was identified as a priority area for the development of a Clinical Quality Registry (CQR) in Australia in 2016. The Australian Dementia Network (ADNeT) Registry is being established as part of the ADNeT initiative, with the primary objective of collecting data to monitor and enhance the quality of care and patient outcomes for people diagnosed with either dementia or Mild Cognitive Impairment (MCI). A secondary aim is to facilitate the recruitment of participants into dementia research and trials. This paper describes the Registry protocol. METHODS: The ADNeT Registry is a prospective CQR of patients newly diagnosed with either dementia or MCI. Eligible patients will be..

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Grants

Awarded by Australian Dementia Network (ADNeT): Bringing together Australia's dementia stakeholders - National Health and Medical Research Council (NHMRC)'s National Institute for Dementia Research (NNIDR)


Awarded by NNDIR


Funding Acknowledgements

Funding for the ADNeT registry is from two projects: 1) The Australian Dementia Network (ADNeT): Bringing together Australia's dementia stakeholders", which is funded by the National Health and Medical Research Council (NHMRC)'s National Institute for Dementia Research (NNIDR) (Principal investigator: Christopher C. Rowe, NHMRC APP: 1152623), and 2) A pilot dementia clinical Quality registry to improve dementia clinical care, which is funded by NNDIR (Principal investigator: John McNeil, NHMRC APP 1140485). The funding body has no role in the design of the study and collection, analysis, and interpretation of data and in writing the manuscript.