Dynamic Consent and biobanking: a means of fostering sustainability?
Jane Kaye, Megan Prictor
GLOBAL GENES, LOCAL CONCERNS: LEGAL, ETHICAL, AND SCIENTIFIC CHALLENGES IN INTERNATIONAL BIOBANKING | EDWARD ELGAR PUBLISHING LTD | Published : 2019
Biobanks are rich repositories of biological materials (such as DNA) and other health and demographic data, often collected over a long period, that can be used for a variety of research purposes to improve the health of individuals and populations. It is important that the value of biobanks is maximized, but at this point in time there are a number of challenges to achieving this. There is continued debate over the most appropriate mode of gaining consent from people who contribute tissue samples and data to biobanks, which will uphold high ethical standards and enable autonomous decisionmaking.